- General Cancer Information Resources
- Sarcoma Patient Advocacy Resources
- Sarcoma Medical Alliances
- Medical Congresses
General Cancer Information Resources
American Association for Cancer Research
www.aacr.org
The American Association for Cancer Research (AACR) is the oldest and largest scientific organization focused on cancer research. The AACR is dedicated to fostering the exchange of knowledge and ideas among cancer researchers, providing training opportunities, and increasing public understanding of cancer. Its website provides resources for scientists, cancer survivors and advocates, and the public.
American Cancer Society
www.cancer.org
The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization headquartered in Atlanta, GA. Its website offers information on different types of cancer, prevention and early detection, treatment, statistics, research news, and community activities.
American Institute for Cancer Research
www.aicr.org
Association of Cancer Online Resources
www.acor.org
ACOR is an Internet-based public charity dedicated to improve the quality of care provided to cancer patients and the quality of life of patients, survivors and their caregivers. ACOR leverages its wide technological and biomedical resource expertise to be a reliable source of knowledge, support and community in a relentless worldwide campaign to empower those suffering from the disease.
Cancercare.org
www.cancercare.org
CancerCare is a national nonprofit organization that provides free, professional support services for anyone affected by cancer.
CureSearch
www.curesearch.org
CureSearch National Childhood Cancer Foundation is dedicated to raising private funds for childhood cancer research for the Children's Oncology Group, the world's largest cooperative cancer research organization.
National Cancer Institute (NCI)
www.cancer.gov
The National Cancer Institute is part of the U.S. National Institutes of Health (NIH). Established in 1937, the NCI is the U,S. government's principal agency for cancer research and training. The NCI website provides comprehensive information on cancer types, treatment, prevention, causes, clinical trials, statistics, support and resources, research and funding, and recent news.
A list of NCI designated centers by state is available at: www3.cancer.gov/cancercenters/centerslist.html
Current information on federally and privately supported clinical research is available at: www.clinicaltrials.gov
National Coalition for Cancer Survivorship
http://www.canceradvocacy.org
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care.
National Foundation for Cancer Research
www.nfcr.org
The National Foundation for Cancer Research (NFCR) was founded in 1973 to support cancer research and public education about prevention, early diagnosis, and treatment. The NFCR promotes collaboration among scientists to accelerate the cancer research and is committed to research for cures for all types of cancers. The NFCR website offers information cancer as well as on NFCR research programs, news, and events.
National Library of Medicine
http://www.nlm.nih.gov/
The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, is the world's largest medical library. The Library collects materials in all areas of biomedicine and health care, as well as works on biomedical aspects of technology, the humanities, and the physical, life, and social sciences.
Planet Cancer
www.planetcancer.org
Planet Cancer is a one-of-a-kind community of support and advocacy for young adults with cancer in their 20s and 30s. Planet Cancer provides resources and advocates for young adults in the clinical and research arena to improve both quality of life and survival rates.
OncoLink
www.oncolink.org
OncoLink was created by University of Pennsylvania cancer specialists to give cancer patients, families, health care professionals, and the general public access to cancer-related information free of charge. The website includes information about specific types of cancer, updates on treatments, and news about research advances.
Sarcoma Patient Advocacy Resources
Amschwand Sarcoma Cancer Foundation (ASCF)
www.sarcomacancer.org
The Amschwand Sarcoma Cancer Foundation (ASCF) was established by Tom Amschwand with the purpose of educating the public about sarcoma, supporting those with the disease, and encouraging sarcoma-specific research. Since its inception in 2001, ASCF has helped establish a physician scientist program, which provides seed money to sarcoma researchers. It has offered temporary housing to numerous patients traveling to Houston for medical treatment through their Shared Families Program and has raised awareness of this disease, and the needs of those affected by it among members of both the general and scientific communities.
Jennifer Hunter Yates Sarcoma Foundation, Inc.
www.jenniferhunteryatessarcomafoundation.org
Jennifer Hunter Yates Sarcoma Foundation (JHYSF) Inc. is committed to providing funding for sarcoma research, education, and patient support, as well as promoting awareness of this rare disease. JHYSF provides a network of families and friends who support patients as they fight and recover from sarcoma.
Karen Wyckoff Rein In Sarcoma Fund
www.reininsarcoma.org
The Karen Wyckoff Sarcoma Research Fund is a non-profit foundation established in August of 2001. The foundation funds the Karen Wyckoff Sarcoma Research Fund, which is the primary sarcoma fund of the University of Minnesota. All proceeds from the fund are dedicated to finding a cure and educating professionals and the public about this rare and devastating cancer.
Kristen Ann Carr Fund
www.sarcoma.com
The Kristen Ann Carr Fund provides grants for cancer research and seeks to improve all aspects of cancer patient life with an emphasis on adolescents and young adults. Additionally, the fund seeks to provide funding for research and treatment of sarcoma; education of young physicians; and improve the quality of cancer patient life.
Liddy Shriver Sarcoma Initiative
www.liddyshriversarcomainitiative.org
The Liddy Shriver Sarcoma Initiative publishes the Electronic Sarcoma Update Newsletter (ESUN), a peer-reviewed bi-monthly online publication for sarcoma patients, caregivers, survivors, oncologists, nurses and other members of the medical team. It is actively involved in the funding of sarcoma research grants internationally in a wide variety of sarcomas. Its website contains a wealth of information about sarcomas and is accessed tens of thousands of times monthly.
The National Leiomyosarcoma Foundation
www.nlmsf.org
The National Leiomyosarcoma Foundation is a non-profit organization founded in July of 2001. Its mission is to provide leadership in supporting research of Leiomyosarcoma, improving treatment outcomes of those affected by this disease as well as fostering awareness in the medical community and general public.
Sarcoma Alliance
http://www.sarcomaalliance.org/Main.html
Founded in 1999 by sarcoma survivor, Suzanne Leider, the Sarcoma Alliance is a nonprofit organization dedicated to providing guidance, education and support free of charge to sarcoma patients. Its website offers resources on treatment options, various sarcoma information, as well as provides access to a variety of support networks already established for adults and children with sarcoma.
Sarcoma Foundation of America
www.curesarcoma.org
The mission of the Sarcoma Foundation of America (SFA) is to act as an advocate for increased research to find new and better therapies with which to treat patients with sarcoma. The SFA raises its own funds to provide research grants to sarcoma researchers. The SFA also interacts with public, private for-profit, and private nonprofit organizations to raise awareness of the treatment needs of sarcoma patients.
Sarcoma.Net
www.sarcoma.net
Sarcoma.Net was founded to help patients, their loved ones, and health care professionals access sarcoma-specific information that will be understandable, useful, fair, and unbiased. Sarcoma Net is developing a communication framework to tackle the problems of sarcomas, whether these problems are personal or professional, medical or surgical, biological or psychological.
Sarcoma Medical Alliances
Sarcoma Alliance for Research through Collaboration (SARC)
www.sarctrials.org
SARC is a non-profit organization created by a group of sarcoma specialists in 2003 to serve as an advocate for sarcoma medical research and for the conduct of clinical trials relating to possible treatments for sarcoma. SARC facilitates dialogue and collaboration among sarcoma researchers and clinicians, assists in the development and dissemination of protocols for clinical trials and information relating to sarcoma research and the results of clinical trials, administers research grants and funding for clinical trials, and acts as a primary resource for those treating sarcoma.
European Organisation for Research and Treatment of Cancer (EORTC) Soft Tissue and Bone Sarcoma Group (STBSG)
www.sarkome.de/eortc
The EORTC STBSG was founded in 1976 to develop, stimulate and co-ordinate studies on all aspects of the treatment of soft tissue sarcomas (STS) and to organize congresses, symposia and conferences to promote these studies. The EORTC STBSG has members from 56 institutions from 14 countries. The founding members came from Italy, France, Germany, Belgium, Switzerland, UK and the Netherlands. The central EORTC office is located in Belgium.
Medical Congresses
American Society of Clinical Oncology (ASCO)
www.asco.org
The American Society of Clinical Oncology (ASCO) is a non-profit organization, founded in 1964, with overarching goals of improving cancer care and prevention and ensuring that all patients with cancer receive care of the highest quality. More than 25,000 oncology practitioners belong to ASCO, representing all oncology disciplines (medical, radiologic, and surgical oncology) and subspecialties.
American Society of Hematology (ASH)
www.hematology.org
The mission of the American Society of Hematology (ASH) is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.
Connective Tissue Oncology Society (CTOS)
www.ctos.org
Formed in 1995, the CTOS is an international group of physicians and scientists with a primary interest in the tumors of connective tissues. The goal of CTOS is to advance the care of patients with connective tissue tumors and to increase knowledge of all aspects of the biology of these tumors, including basic and clinical research. Since its founding, CTOS has grown to an organization of more than 400 members representing over 30 countries.
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